Well I’m just going to say it – Fibromyalgia is a bitch!! Add to it chronic pain from MVA injury and its a super bitch!!
A couple of years ago now, I was involved in a “Living with Quality program” run by Rehab staff. I met an amazing bunch of people who had found the quality of their life ‘changed’ by stroke, MS, accident. Together we faced the onslaught of able bodied people telling us what we needed to do to improve the quality of our lives. After hearing everyone’s story, I shared this with them:
QUIDDITY OF QUALITY
We miss the simple pleasures
The little joys of life
Like shopping with a best friend
Or dancing with a wife
Being able to nurse the baby
Or run and jump and play
Lift and cuddle grandkids
And chase them round all day
We can’t enjoy a quiet drink
Just cold water instead
Alcohol might help the pain
But it doesn’t mix with meds
We can’t dig a garden
Or throw a fishing line
We can’t even walk the dog
Or bushwalk when its fine
We can’t go to concerts
Or a walk along the beach
Or sit long at a computer
So much is out of reach
So, yes we can do exercise
While sitting in our chair
Walk our steps up and back
And pretend that we don’t care
But hell we get so angry
So frustrated and mad
We try,and try and try again
And then we get so sad
So when we sit here talking
About life and quality
We know that as you try to help
It’s the things you cannot see
You say its all adjustment
To recognise our limit
To only do what we can and
The quality will be in it
But it’s all the simple pleasures
They give joy and make our hearts sing
Without that chorus in our life
Quality’s an elusive thing
Why am I sharing this here?
I am hoping that by sharing my insight, others in the same situation, will take heart in knowing that they are not alone and
that those that are not, will have a better understanding of the impact of shallow suggestions and presumptions. Thanks for reading till the end!
Until next time
Nanny xx
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